The association between stroke and caregiver employment after survivors’ discharge. A cross-sectional analysis within a longitudinal study

This study aimed to comprehensively elucidate the outcomes of the role transition of caregivers of stroke survivors by examining the associations between variables influencing their employment decisions. Methods and results This study used a cross-sectional analysis within a more extensive longitudinal research project that enrolled caregivers of stroke survivors discharged from inpatient rehabilitation, and was conducted following the strengthening the reporting of observational studies in epidemiology guidelines. In total, 159 participants were included in this study. This study compared caregivers who had left/reduced work with those who maintained full employment. The overall pooled data demonstrated that those who left/reduced work were significantly younger than those who maintained it and experienced a higher overall burden, particularly in terms of time dependence and developmental aspects. They also reported less social support, especially among friends. Multivariate analyses revealed that older age increases the likelihood of maintaining employment. A high time-dependent burden was found to have a negative effect on the probability of maintaining employment; whereas, a high emotional burden was associated with a greater probability of maintaining full work. No significant differences were found in mutuality or preparedness between the two groups. Overall, caregivers reported sufficient preparation, low total burden, and low perceived support with slight anxiety and depression. Conclusion Evidence suggests the need for targeted interventions and policies to reduce caregiver burden, particularly in terms of time and emotional aspects. Strategies aimed at improving social support, particularly from friends, can help caregivers balance their caregiving responsibilities with their professional roles. Addressing the unique needs of this population through targeted interventions and support services may be crucial to helping young caregivers maintain a balance between their work and caregiving responsibilities.