Sex education in adolescents with ASD. A qualitative study on the role of parents in the Italian contex

Background: Sex education for adolescents with autism spectrum disorders (ASD) is often overlooked in traditional educational programs, despite scientific evidence highlighting the need for a specific personalized approach. Family involvement is essential, but Italian literature on the role of caregivers in this area is still limited. Materials and methods: This qualitative study adapted a previously developed qualitative protocol to the Italian context. A focus group was conducted with parents of adolescents with ASD (n=9) and an online questionnaire was administered (n=12). The questions explored previous experiences, perceptions of sex education, content considered a priority, and preferred methods of intervention. Results: The thematic analysis highlighted two macro areas: 1) the role of parents in sex education, ranging from direct supervision to delegation to professionals; 2) the vulnerability of children with ASD, linked to communication difficulties, exposure to inappropriate content and lack of experiential education. Parents expressed a strong need for clear, experiential and culturally sensitive educational tools. Conclusions: The study highlights the need to develop structured and inclusive sex education programsforadolescents with ASD, actively involving caregivers. A multidimensional and collaborative approach is essential, capable of integrating emotional, physical and regulatory aspects. The results offer a significant contribution to bridging the gap in Italy on this issue and to guiding future educational and policy interventions.