The article presents the results of a research on the role that digital media play in making visible the invisible effects of multiple sclerosis (MS) at different stages of the disease. Twenty in-depth interviews with MS patients in Sicily and Sardinia and an ethnographic analysis of three Facebook groups of Sicilian and Sardinian patients were conducted. The results, which will be illustrated in this paper, point to a central role of digital media in discovering and living with multiple sclerosis, as both a valuable resource for finding information and as a tool for building mutual aid relationships
La diversità "invisibile". Sclerosi multipla e media digitali: una ricerca nel Sud Italia / Spampinato, Angelica; Volterrani, Andrea. - In: PROBLEMI DELL'INFORMAZIONE. - ISSN 0390-5195. - 3(2021), pp. 439-463. [10.1445/102515]
La diversità "invisibile". Sclerosi multipla e media digitali: una ricerca nel Sud Italia
Angelica SpampinatoSecondo
;
2021
Abstract
The article presents the results of a research on the role that digital media play in making visible the invisible effects of multiple sclerosis (MS) at different stages of the disease. Twenty in-depth interviews with MS patients in Sicily and Sardinia and an ethnographic analysis of three Facebook groups of Sicilian and Sardinian patients were conducted. The results, which will be illustrated in this paper, point to a central role of digital media in discovering and living with multiple sclerosis, as both a valuable resource for finding information and as a tool for building mutual aid relationshipsI documenti in IRIS sono protetti da copyright e tutti i diritti sono riservati, salvo diversa indicazione.
