Research providing an evidence-base for autistic adult services is sparse. The Autism Spectrum Disorders in the European Union (ASDEU) network implemented an on-line survey to determine gaps in autistic adult diagnostic evaluation and post-diagnostic support services. More than 55% in all groups experienced most of the recommended features for diagnostic evaluation for autistic adults. In contrast, < 2% of adults or carers, and < 21% of professionals experienced each of the recommended features for post-diagnostic support. In contrast to 61% of professionals, only about 30% of autistic adults and carers had knowledge of good local services models for autism diagnosis in adulthood. There are major differences between good practice guidelines for diagnostic and post-diagnostic care for autistic adults, and what is actually experienced by services users and professionals.
Real-world experiences in autistic adult diagnostic services and post-diagnostic support and alignment with services guidelines: results from the ASDEU study / Scattoni, M. L.; Micai, M.; Ciaramella, A.; Salvitti, T.; Fulceri, F.; Fatta, L. M.; Poustka, L.; Diehm, R.; Iskrov, G.; Stefanov, R.; Guillon, Q.; Roge, B.; Staines, A.; Sweeney, M. R.; Boilson, A. M.; Leosdottir, T.; Saemundsen, E.; Moilanen, I.; Ebeling, H.; Yliherva, A.; Gissler, M.; Parviainen, T.; Tani, P.; Kawa, R.; Vicente, A.; Rasga, C.; Budisteanu, M.; Dale, I.; Povey, C.; Flores, N.; Jenaro, C.; Monroy, M. L.; Primo, P. G.; Charman, T.; Cramer, S.; Warberg, C. K.; Canal-Bedia, R.; Posada, M.; Schendel, D.. - In: JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS. - ISSN 0162-3257. - (2021). [10.1007/s10803-021-04873-5]
Real-world experiences in autistic adult diagnostic services and post-diagnostic support and alignment with services guidelines: results from the ASDEU study
Fatta L. M.;
2021
Abstract
Research providing an evidence-base for autistic adult services is sparse. The Autism Spectrum Disorders in the European Union (ASDEU) network implemented an on-line survey to determine gaps in autistic adult diagnostic evaluation and post-diagnostic support services. More than 55% in all groups experienced most of the recommended features for diagnostic evaluation for autistic adults. In contrast, < 2% of adults or carers, and < 21% of professionals experienced each of the recommended features for post-diagnostic support. In contrast to 61% of professionals, only about 30% of autistic adults and carers had knowledge of good local services models for autism diagnosis in adulthood. There are major differences between good practice guidelines for diagnostic and post-diagnostic care for autistic adults, and what is actually experienced by services users and professionals.| File | Dimensione | Formato | |
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