In the management of both ordinary and extraordinary events, religions act as “systems of meaning” and as “systems of communication”, offering cognitive, motivational, affective, as well as narrative resources, helping persons to give order to reality. Traditionally such a discursive help offered by religions, where it is viewed as “Salvation gift”, is particularly significant for ill persons. Among diseases, rare ones represent a really complicated situation, being both subjective projects and personal/social identity seriously threatened. As a consequence, persons and primary caregivers suffering with them are called to find new ways toward “normalization”, in the effort to construct new certainties and meanings about the personal condition, the family situation and the parental identity. Our study aims to investigate the role of religiosity in facing with the intense existential uncertainty offered by rare disease. Forty-four narrative interviews were conducted with parents of children suffering of rare disease and analyzed through Content and Discourse Analysis. Socio-epistemic rhetoric, metaphors, emotional markers, certainty/uncertainty markers are the interpretative lens that allowed us to understand the power of religion to offer several and specific meanings in the parental couple, fluctuating from a painful upheaval and attitudes of hope.
Faith as a "normal drug" in caring rare disease / Zagaria, ALTOMARE ENZA; Scardigno, Rosa; Mininni, Giuseppe. - (2017). (Intervento presentato al convegno IAPR Conference Culture, Context and Existential Challenges Hamar Norway, August 21-24.2017 tenutosi a Hamar Norway).
Faith as a "normal drug" in caring rare disease
Altomare Enza Zagaria;
2017
Abstract
In the management of both ordinary and extraordinary events, religions act as “systems of meaning” and as “systems of communication”, offering cognitive, motivational, affective, as well as narrative resources, helping persons to give order to reality. Traditionally such a discursive help offered by religions, where it is viewed as “Salvation gift”, is particularly significant for ill persons. Among diseases, rare ones represent a really complicated situation, being both subjective projects and personal/social identity seriously threatened. As a consequence, persons and primary caregivers suffering with them are called to find new ways toward “normalization”, in the effort to construct new certainties and meanings about the personal condition, the family situation and the parental identity. Our study aims to investigate the role of religiosity in facing with the intense existential uncertainty offered by rare disease. Forty-four narrative interviews were conducted with parents of children suffering of rare disease and analyzed through Content and Discourse Analysis. Socio-epistemic rhetoric, metaphors, emotional markers, certainty/uncertainty markers are the interpretative lens that allowed us to understand the power of religion to offer several and specific meanings in the parental couple, fluctuating from a painful upheaval and attitudes of hope.File | Dimensione | Formato | |
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