Objectives To develop the first consensus to standardize the management of patients with Anorectal Malformations (ARMs) transitioning from childhood to adulthood. Methods A dedicated task force of experts performed an extensive literature review and multiple meetings to define the most important aspects of transition of care. The findings were discussed with all ARM-net consortium members and a set of practical recommendations agreed upon at the annual meeting in 2016. Result We defined seven domains that are essential to provide an effective and practical transition process. Within each domain we have developed a set of key recommendations that are important to be considered for ARM patients entering the age of transition. Conclusions It is crucial that transition begins at an early age with regular and well-structured follow-up. Cooperation with a selected multidisciplinary team of pediatric and adult practitioners is required to prepare patients and families for effective transition to adult care and to reduce long term morbidity

Transition of care in patients with anorectal malformation. Consensus by the ARM-net consortium / Giuliani, Stefano; Grano, Caterina; Aminoff, Dalia; Schwarzer, Nicole; Van De Vorle, Mariette; Cretolle, Celia; Haanen, Michel; Brisighelli, Giulia; Marzheuser, Stefanie; Connor, Martin. - In: JOURNAL OF PEDIATRIC SURGERY. - ISSN 0022-3468. - 52:11(2017), pp. 1866-1872. [10.1016/j.jpedsurg.2017.06.008]

Transition of care in patients with anorectal malformation. Consensus by the ARM-net consortium

Grano, Caterina
Co-primo
;
2017

Abstract

Objectives To develop the first consensus to standardize the management of patients with Anorectal Malformations (ARMs) transitioning from childhood to adulthood. Methods A dedicated task force of experts performed an extensive literature review and multiple meetings to define the most important aspects of transition of care. The findings were discussed with all ARM-net consortium members and a set of practical recommendations agreed upon at the annual meeting in 2016. Result We defined seven domains that are essential to provide an effective and practical transition process. Within each domain we have developed a set of key recommendations that are important to be considered for ARM patients entering the age of transition. Conclusions It is crucial that transition begins at an early age with regular and well-structured follow-up. Cooperation with a selected multidisciplinary team of pediatric and adult practitioners is required to prepare patients and families for effective transition to adult care and to reduce long term morbidity
2017
adult; anorectal malformation; follow-up; imperforate anus; long-term; transition; adolescent; adult; anal canal; anorectal malformations; europe; female; follow-up studies; humans; male; rectum; transition to adult care; young adult; consensus; health status indicators
01 Pubblicazione su rivista::01a Articolo in rivista
Transition of care in patients with anorectal malformation. Consensus by the ARM-net consortium / Giuliani, Stefano; Grano, Caterina; Aminoff, Dalia; Schwarzer, Nicole; Van De Vorle, Mariette; Cretolle, Celia; Haanen, Michel; Brisighelli, Giulia; Marzheuser, Stefanie; Connor, Martin. - In: JOURNAL OF PEDIATRIC SURGERY. - ISSN 0022-3468. - 52:11(2017), pp. 1866-1872. [10.1016/j.jpedsurg.2017.06.008]
File allegati a questo prodotto
File Dimensione Formato  
Giuliani_Transition_2017.pdf

solo gestori archivio

Tipologia: Versione editoriale (versione pubblicata con il layout dell'editore)
Licenza: Tutti i diritti riservati (All rights reserved)
Dimensione 481.66 kB
Formato Adobe PDF
481.66 kB Adobe PDF   Contatta l'autore

I documenti in IRIS sono protetti da copyright e tutti i diritti sono riservati, salvo diversa indicazione.

Utilizza questo identificativo per citare o creare un link a questo documento: https://hdl.handle.net/11573/1210332
Citazioni
  • ???jsp.display-item.citation.pmc??? 5
  • Scopus 28
  • ???jsp.display-item.citation.isi??? 24
social impact